More great news with granddaughter Margot. She had an appointment with the pulmonologist and the neurologist this week. She now only has to be on oxygen at night and while in her car seat. Also, beginning in early December, her anti-seizure medications will be reduced bit by bit. She'll remain on the sleep apnea monitor so that it can be determined if she has any more seizures (her seizures cause her to stop breathing).
Here are pics of her without all of the extra tubing.